Information Day: Becker muscular dystrophy
Join the Muscular Dystrophy Campaign on Saturday 15 June from 10am to 4pm in Daventry, Northamptonshire for an Information Day for families living with Becker muscular dystrophy .
The event, organised by the Muscular Dystrophy Campaign, will be led by Dr David Hilton-Jones, Consultant Neurologist, and will provide an opportunity to hear the latest updates in research, diagnosis and management of the condition from expert clinicians and researchers.
Families and individuals will also hear from expert health professionals about activity and exercise and attend a workshop lead by a physiotherapist.; attend workshops on access to education, welfare support and sexuality and relationships; take part in a one-to-one advocacy and welfare support surgery, and meet other people affected by Becker muscular dystrophy.
The day will be held at Daventry Court Hotel, Sedgemoor Way, Daventry, Northamptonshire NN11 0SG, just off junction 18 of the M1 and close to the M40.
Book your place
To book your place, please complete the registration form and return to: Muscular Dystrophy Campaign, Support Services, FREEPOST RRLK-LCZC-YLKH, 61 Southwark Street, London SE1 0HL.
Crèche facilities will be available during the day. Should you require overnight accommodation on Friday 14 June please book directly with the hotel by calling 01327 307000 and quoting the Muscular Dystrophy Campaign.
About The Muscular Dystrophy Campaign
Muscular dystrophy and related neuromuscular conditions are regarded as rare and, in many cases, even ultra-rare conditions. There are currently no efficient treatments or cures available for most of these conditions. Research, however, advances fast and a number of clinical trials to test the clinical benefit of promising technology are under way.
Over more than 50 years, the charity has contributed to crucial scientific breakthroughs in the field of muscular dystrophy and related neuromuscular conditions such as: laying the foundations for the promising technology of ‘exon skipping’ which is currently being tested in clinical trials for boys with Duchenne muscular dystrophy, and funding work that has led to a scientific breakthrough in finding a treatment for mitochondrial myopathy, which is now close to clinical trial.
Scientists and clinicians are beginning to express cautious optimism that treatments might become a reality in the near future, but to do this we need to continue to fund research. The Muscular Dystrophy Campaignaim to find treatments and ultimately cures for muscular dystrophy and related neuromuscular conditions and improve the lives of everyone affected by them and we need your help to do this.
The Muscular Dystrophy Campaign’s work has five main focuses:
- fund world-class research to find effective treatments and cures
- provide practical information, advice and emotional support for individuals with muscular dystrophy and other related conditions, their carers and families
- campaign to bring about change and raise awareness of muscular dystrophy and other related conditions
- award grants towards the cost of specialist equipment, such as powered wheelchairs
- provide specialist education and development for health professionals.
The Muscular Dystrophy Campaign rely almost entirely on voluntary donations and legacies to fund their work. Dedicated volunteers,companies, trusts and foundations help to raise money to fund vital work.
For more information please call Maureen on 020 7803 4800.