Join the Muscular Dystrophy Campaign on Saturday 15 June from 10am to 4pm in Daventry, Northamptonshire for an Information Day for families living with Becker muscular dystrophy .

The event, organised by the Muscular Dystrophy Campaign, will be led by Dr David Hilton-Jones, Consultant Neurologist, and will provide an opportunity to hear the latest updates in research, diagnosis and management of the condition from expert clinicians and researchers.

Families and individuals will also hear from expert health professionals about activity and exercise and attend a workshop lead by a physiotherapist.; attend workshops on access to education, welfare support and sexuality and relationships; take part in a one-to-one advocacy and welfare support surgery, and meet other people affected by Becker muscular dystrophy.

The day will be held at Daventry Court Hotel, Sedgemoor Way, Daventry, Northamptonshire NN11 0SG, just off junction 18 of the M1 and close to the M40.

Book your place

To book your place, please complete the registration form and return to: Muscular Dystrophy Campaign, Support Services, FREEPOST RRLK-LCZC-YLKH, 61 Southwark Street, London SE1 0HL.

Crèche facilities will be available during the day. Should you require overnight accommodation on Friday 14 June please book directly with the hotel by calling 01327 307000 and quoting the Muscular Dystrophy Campaign.

About The Muscular Dystrophy Campaign

Muscular dystrophy and related neuromuscular conditions are regarded as rare and, in many cases, even ultra-rare conditions. There are currently no efficient treatments or cures available for most of these conditions. Research, however, advances fast and a number of clinical trials to test the clinical benefit of promising technology are under way.

Over more than 50 years, the charity has contributed to crucial scientific breakthroughs in the field of muscular dystrophy and related neuromuscular conditions such as: laying the foundations for the promising technology of ‘exon skipping’ which is currently being tested in clinical trials for boys with Duchenne muscular dystrophy, and funding work that has led to a scientific breakthrough in finding a treatment for mitochondrial myopathy, which is now close to clinical trial.

Scientists and clinicians are beginning to express cautious optimism that treatments might become a reality in the near future, but to do this we need to continue to fund research. The Muscular Dystrophy Campaignaim to find treatments and ultimately cures for muscular dystrophy and related neuromuscular conditions and improve the lives of everyone affected by them and we need your help to do this.

The Muscular Dystrophy Campaign’s work has five main focuses:

• fund world-class research to find effective treatments and cures
• provide practical information, advice and emotional support  for individuals with muscular dystrophy and other related conditions, their carers and families
• campaign to bring about change and raise awareness of muscular dystrophy and other related conditions
• award grants towards the cost of specialist equipment, such as powered wheelchairs
• provide specialist education and development for health professionals.

The Muscular Dystrophy Campaign rely almost entirely on voluntary donations and legacies to fund their work. Dedicated volunteers,companies, trusts and foundations help to raise money to fund vital work.

More Information

For more information please contact infoday@muscular-dystrophy.org or call Maureen on 020 7803 4800.

Alternatively, please visit The Muscular Dystrophy’s Campaign’s website.

Products on display include:

• Volker 3080
• Evolution 400
• Klearside Rainbow
• Residential
• Savi Tom

Original Message:
http://twitter.com/BakareBeds/status/329572124215885824

Why not visit our stand at Naidex Birmingham F70 where you will be sure of a warm and friendly welcome.

A warm welcome from the BaKare team awaits you on stand 115 – we’d love to see you there.

The Early Support information resources describe, discuss and explore specific conditions, disabilities and difficulties and more general information that parent carers and young people have said they would find useful to know. Early Support provides a wide range of FREE resources and training to support children, young people, families and service deliverers.

The resources were produced in response to requests from families, professional agencies and voluntary organisations for better standard information about particular conditions or disabilities and more general and reliable background knowledge resources.

Kim Bevan, Director of Early Support, said: ‘Parents, carers, young people and practitioners have told us how much they value having reliable and accurate sources of information – this is what the Early Support information resources provide. We hope these resources will open the door to increased knowledge about conditions, disabilities, additional needs and the support that could be available for all, from birth to adulthood . We would like to thank all of our voluntary sector partners for so generously sharing their knowledge and expertise in helping us to produce these resources – the sector have stepped up and provided high quality resources for all‘

‘Over the coming months, we will be providing additional versions of all of these resources in web-based versions, with photographs, diagrams and film footage to ensure they are engaging and interactive when accessed online.’

About the National Children’s Bureau

The National Children’s Bureau (NCB) is a leading research and development charity working to improve the lives of children and young people, especially the most vulnerable. The NCB work with children, for children to reduce the impact of inequalities, by influencing government policy, being the voice for 200,000 front-line professionals, and inspiring practical solutions on a range of social issues including health, education and youth justice, through our extensive research and evidence work.

Every year the NCB reach more than 100,000 children and young people through the membership scheme, links with voluntary, statutory and private organisations, and the 30 specialist partnership programmes that operate under their charitable status.

www.ncb.org.uk

Early Support resources can be accessed at:

Web: www.ncb.org.uk/earlysupport
Facebook: www.facebook.com/earlysupport
Twitter: www.twitter.com/earlysupport
Email: earlysupport@ncb.org.uk

BaKare was conceived in 1989 when founder & managing director John Baker’s uncle, suffering from Multiple Sclerosis, moved to Cornwall, which led to John developing the first BaKare bed. Growing demand for what clients described as a ‘hospital bed which can be used within the home’ from word of mouth recommendations and referrals through the MS Society, led to BaKare Beds Limited being incorporated in April 1993. John Baker was soon approached by the leading German manufacturer Volker GMBH to import their prestigious range of healthcare beds, which were considered groundbreaking at the time.

With John Baker’s direct experience of the daily issues faced by his customers and with the benefit and help of his wife Wendy (a former nurse and care home manager), Johns collaboration with Volker contributed to many of the unique features of the worldwide Volker bed program of today.

The BaKare’s range of beds have a unique appearance making them suitable for clients who require an adjustable bed, but do not like the look of traditional hospital or divan style beds. The homely appearance is gained from using wooden veneer and solid wood finishes, with a complimentary range of matching bedroom furniture to match.

Demand not only grew from people within their own homes; soon, care homes looking to raise already excellent standards of care, were looking to replace their beds with BaKare’s beds to provide comfort, independence and dignity to their clients. Prestigious names such as The Dame Hannah Rogers Trust, The Royal Chelsea Hospital and The Leonard Cheshire Foundation became clients of BaKare Beds.

By carefully listening to their customers, BaKare have kept at the forefront of developments, leading to the introduction of more solutions for everyday living. In 2003, BaKare introduced a range of real wood cots for children with special needs which have since been supplied to individuals, social services and several major children’s hospices. In 2009, BaKare won the prestigious Naidex New Product of the Year award and have since continued evolving solutions to assist individuals requiring long term care, such as clients striving for independence and mobility, and people with children who have physical disability and/or learning difficulties.

The traditions of providing innovative and attractive beds coupled with excellent customer service continue today, with long term BaKare customers in as far-away places such as the Shetlands, Jersey and West Cornwall whilst the majority of new clients are still being referred to us, and both staff and clients of BaKare now look forward to another 20 years of excellence.

The show brings together healthcare professionals, members of the public, retailers, buyers and dealers to:

• Source the latest products, services to the market
• Benefit from the free CPD Naidex Conference
• Get expert independent advice and gain new ideas
• Network and share experiences with colleagues and friends
• Test the latest products and adaptations in a domestic environment
• Network and do business in the Trade Lounge

BaKare will be showcasing our range of stunning adjustable beds and furniture at Naidex.

Products on Display Include:

• Evolution 400
• Volker 3080
• Savi Luke
• Klearside Rainbow
• Residential

Why not come and visit BaKare on 30th April – 2nd May 2013 on Stand F70 @ Naidex, NEC, Birmingham.

A warm welcome awaits.

By visiting you can:-

• Source and test the latest products and services on the market.  With over 120 exhibitors the events offer advice and information on: mobility, seating, beds, accessible vehicles, communication, sensory, bathing, continence, wellbeing, sports and leisure, specialist schools and colleges, benefits and much, much more.

• Voluntary and service organisations are also on hand with information on support, holidays, publications and so on.

• Funding Point In view of the current economic climate the Kidz Team have introduced the Funding Point to all the Kidz events.  Here you can access information on alternative funding streams for equipment and much more.

• Develop your knowledge and understanding by attending the free seminars.  A full timetable of presentation on a wide range of issues will run alongside the exhibition. For professionals certificates of attendance will be available to collect on the day to boost you CPD portfolio.

• Fun & Features  for all  the children, a full program to follow.

• An opportunity to network and share experiences with colleagues and friends.

Download FREE Entry ticket and showguide.

BaKare Beds will be exhibiting on stand F5. Please come and join us.

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